Welcome to MDS Ireland Support Group
This support group was established to help people living with MDS and their Families. Myelodysplastic syndromes (MDS) is a group of diseases where the bone marrow fails to make enough healthy blood cells.
MDS Ireland Support group was established in 2012 with the help of Doctors, Patients and Family members with aim of bringing awareness to MDS in Ireland and enabling patients to share their personal experiences and offer one another emotional and moral support. The group also provides practical advice and tips to help cope with different situation.
Benefits of participating in support groups may include:
- Feeling less lonely, isolated or judged
- Gaining a sense of empowerment and control
- Improving your coping skills and sense of adjustment
- Talking openly and honestly about your feelings
- Reducing distress, depression or anxiety
- Developing a clearer understanding of what to expect with your situation
- Getting practical advice or information about treatment options
- Comparing notes about resources, such as doctors and alternative option
- To provide support to all who have been diagnosed with MDS or who are supporting family members or friends with MDS.
- To provide a safe environment for MDS patients, family members and friends to share their thoughts, knowledge and experience living with MDS.
- To provide information and raise awareness of MDS in Ireland by fundraising and media coverage.
- To organise several national patient information meetings with specialist speakers
- To help patients create small regional support group meetings, to meet informally – or organise activities or small presentations.
- To distribute information and raise awareness of MDS to patients, carers and health care professionals across Ireland.
- To provide access to a list of Irish consultants, specialising in MDS.
- To develop and maintain a website, providing information on MDS. Also direction to other relevant sites.
We would like to acknowledge and thank Dr Helen Enright and the staff at Tallaght Hospital, Dublin, MDS UK Patient Support Group and Irish Cancer Society for their support and guidance.